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Sunday, May 18, 2014

An Opportunity for Growth

Home sweet Home for 9 days

Today was one of those days that we call an 'Opportunity for Growth.'

After nine days in the ER, each day being told we were waiting for a bed to open in one of only two California facilities that could possibly treat our son, we heard early this afternoon that neither facility would, after all, take our son.  Reason?  Because of his cecostomy.

Keep in mind two things:

1)  The whole cecostomy flushing process is something that even our young daughters can handle.  It consists of adding three teaspoons of salt and two teaspoons of liquid castile soap to two liters of tap water, then attaching a tube to his cecostomy tube to admit the mixture.  That's it.
2)  The medical facilities we were hoping to get in to are run by real, live medical doctors and nurses.  The kind that do medically kinds of things on a regular basis.

So it's kind of puzzling and frustrating that he's being denied admission to a medical facility because of a pretty innocuous medical situation.  Am I the only one who thinks that?

And despite there being a documented, profound reason for treatment, and all professionals involved in his case state that he is in definite need of immediate help, he won't get it.  Just because of his cecostomy.

It makes no sense.

And what's worse. . .it leaves us without any current options but to to bring a boy not functioning well at home back into that home with no obvious forms of treatment to pursue.

We couldn't feel more helpless.

That said, I woke this morning determined not to get overwhelmed by what our circumstances look like and trust that God has it all under control.  So that's what I'm going to do.

Meanwhile, I'm going to sleep in my own blessed bed for the first time in ages and get a good rest.

Because, tomorrow, I have some impossible mountains to climb on behalf of my precious, precious son.


  1. I agree-- that is messed up. And makes no sense. Nurses have to perform enemas regularly and your son's condition doesn't seem to be much different than that. I don't get it.

    1. It's not, Heather. . .if anything, it's way easier to do. It makes no sense. There is literally NO help available for our son. . .we may even have to look into getting the cecostomy reversed just to possibly get him the help he needs. I am so grieved and so at a loss and so sad for my boy.

  2. So sorry Robynne. Unbelievable. But we had a similar situation with my father-in-law a couple years ago (different medical condition) and God provided other better alternatives. Praying and trusting God has something better in mind for you, too.

    1. Thank you, Kris. I could easily sink into a bit of despair if I didn't know Who loves my son even more than I do. We have had some possibilities (that we hadn't even known existed!) broached to us today that seem to be an even better fit, so we are encouraged. We need to sort something soon, though, so praying for stability for our son while we wait on God's provision and covering for our family while we process this situation and transition.


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