|Nathan finally learned the trick of volume control|
Being here has been interesting in a number of ways. For my son, the novelty has certainly worn off. The pediatric section has three mobile dvd player units with a stack of dvds encased in each, and he's watched every single one. Even the ones meant for much younger patients.
There's a mobile Wii as well and he's played every game on that, too. There's not a lot else to do here, though we've played dominoes and Trouble and made up a few games, to try to pass the time.
A couple of times per day, a nurse comes in to check his vitals or bring in the stuff for his cecostomy flushes, but other than that, we are left largely on our own.
Thanks to the Ronald McDonald House, I am getting some sleep, for which I am abundantly grateful. I can't imagine what I'd feel like after a week in the ER if I hadn't been able to slip away for a few hours of uninterrupted sleep each night.
But what I have left at home. . .my husband, other three kids, and a pile of things 'to do. . .' is starting to weigh on me. At first, we were told we'd be here for one night's stay. . .that turned to two days. We were then told it might take a week. Today, however, was the first time that I heard the words 'possibly two weeks' slip out of someone's mouth. I tried not to show it on my face, but my heart was breaking.
Waiting so long for the help your son so desperately needs is pretty hard.